Tuesday, 4 days and counting

Well, here is the latest on Maddi.

They have taken her off all of the sedation and she is becoming more and more active. She doing more and more purposeful actions like trying to grab her IV and the breathing tube.

Last night John and I were telling her that we were going to leave for a little while and she turned her head towards the sound of our voices. She turned first when I spoke and so John had to see if she would do the same thing if he spoke to her. She repeated the same action. That was the first time she has responded to voice. We were so excited!!!

This morning we wanted to neurology team to there seeing what we were seeing. Lots of movement. In fact they warned me when I left for the mandatory 7-8 a.m. "boot", as I call it, (we can't be in the room during that time) that if she continues when I return she might have her hands restrained. YEAH! I hope to see her strapped down, only under these circumstances.

Until the team comes in we really don't know anything else. Her cranial levels are staying really low except when she coughs. It is really too bad that she had a bit of a cold/cough before the accident. It is making this a little more uncomfortable. She really doesn't like it when they have to clean the tubes for secretions (snot/mucus tube for the layman). I keep saying to Maddi, "you keep on giving those nurses that sass!" If I were to try to diagram that sentence it would be placed in the "need remediation" pile but it comes off the tongue with such fun.

We have been teasing the nurses at the front desk that they need to come up with a password to let us in so we don't have to faced the "I have a critically ill child, please let me in." every time we go into the unit.

We chose our own Hogwarts password yesterday, "lemon drops". Today we are thinking it should be "chocolate frogs" or something. It gives us a giggle, which is infinitely better than the dread, to pick up the phone and say something other than, "Maddi's mom". The nurses either find it kind of fun or are good at humoring us. Really, we know they have a camera and we have been here long enough that they recognize our voice and what we look like but it is fun to pretend we are entering Griffindor tower.

That is all we know. Thanks for all you love,support and prayers. We are definitely strengthened from an outside source.

Fighting is so much better than still.