Busy Day

Yesterday, was an extremely busy day for us. We had lots of people coming and going yesterday. We had the rehab people and the Occupational Therapist and the Physical Therapist come in and talk about the course of care.

They taught us some exercises that we need to do with her to help keep her limbs flexible. Lots to remember and lots of work. It felt good to be doing something and to feel like we are headed somewhere else.

We had the worst case scenario talk with the Doctors last night. It was kind of a crappy day.

Maddi is breathing on her own. They turned the ventilator off and she is working hard to breath. She also has an infection too so they put her on an antibiotic for that. She is still responding to sound and is moving the right side of her body very purposefully so it is encouraging.

They plan to take the ventilator out today so that will be a great moment. That is the last step she needs to take to get out of the PICU.

We changed the password to "chocolate frogs" we are thinking "Quiddich" next.

They told me to choose a book to read that Maddi has most recently read to help develop the connections that are not damaged in her brain. It needs to be something familiar that she has a lot of experience with. I have decided on the Book of Mormon. She personally finished that book four times already and we have read from every night before bedtime from before she was born. I think that will have the best reaction from her. It was that or Harry Potter. So that is my goal for today.

We need to get to the hospital this morning. I can only do these posts in the morning. The evening and the leaving is the most difficult.

So now you know what I know. Keep Praying. We need a miracle for Maddi!