Well, so far today has been quiet. It seems like all the action happens after we leave. Last night she had a bit of an asthma attack but they caught it quick and she responded well.
They took the drainage tube out of her head!!!!!YEAH!!!!! That is one more baby step towards to end result. What that means is that her head is no longer swelling and that they don't have to worry about any additional damage being done as she heals. That is great news!
Also it means that we will be able to begin more intensive physical therapy! We are excited about that
I have been playing some piano music for her and it seems to calm her. I thought she might want me to mix it up so I put on the music we always sing together in the car and she got a little upset. She seemed put out that she couldn't sing along with me.
She seems to be following me a little bit with her eyes as well. Nothing documented but it seems that way to me. We are just keeping things nice and quiet for her!
Funny thing happened today; I wasn't sure who was at the admitting desk for the Unit so I didn't use the password. The nurse was unsure what to do.
She said, "Well, what is the password?"
I said "Well, I wasn't sure if you would know the password."
She said, "I can't let you in until you tell me the password, so what is it?"
We had decided on "Fire Whiskey" so that allowed me in. It was a pretty funny turn of events.
I think people probably think we are totally crazy but it makes for a good laugh!
Thanks again for all of your support. I know it is hard not knowing what to do but know that we feel of the love and prayers coming our way. Thank you so much!
Quiet and Still, Slow and Steady, Day by Day
They took the drainage tube out of her head!!!!!YEAH!!!!! That is one more baby step towards to end result. What that means is that her head is no longer swelling and that they don't have to worry about any additional damage being done as she heals. That is great news!
Also it means that we will be able to begin more intensive physical therapy! We are excited about that
I have been playing some piano music for her and it seems to calm her. I thought she might want me to mix it up so I put on the music we always sing together in the car and she got a little upset. She seemed put out that she couldn't sing along with me.
She seems to be following me a little bit with her eyes as well. Nothing documented but it seems that way to me. We are just keeping things nice and quiet for her!Funny thing happened today; I wasn't sure who was at the admitting desk for the Unit so I didn't use the password. The nurse was unsure what to do.
She said, "Well, what is the password?"
I said "Well, I wasn't sure if you would know the password."
She said, "I can't let you in until you tell me the password, so what is it?"
We had decided on "Fire Whiskey" so that allowed me in. It was a pretty funny turn of events.
I think people probably think we are totally crazy but it makes for a good laugh!
Thanks again for all of your support. I know it is hard not knowing what to do but know that we feel of the love and prayers coming our way. Thank you so much!
Quiet and Still, Slow and Steady, Day by Day
Once again your updates give me an insight of what you are going through and the strength you exhibit. Thank you for that. I think it's hitting Ari a little more each day. Today was a rough day for her at church. I think she's chomping at the bit to see Maddi and yet she understands that can't happen right now. I'm sure quite a few of her friends are feeling that way as well. These updates are the closest most of us can get to Maddi and they keep us all inspired. Slow and steady is good. Maybe not the slow part since we all seem to want things NOW...but slow and steady is what is best for Maddi. I'm just excited about the 'steady' part. It means she's still moving forward. And that is good news.
ReplyDeletePam Utykanski
i love to hear such good news, im so glad she is healing and taking lots of baby steps to the top. way to go Maddi feel better, hope to see you soon, luv ya!
ReplyDeleteSo glad to hear about the drain coming out!
ReplyDeleteIt was fun to have you guys over last night as always, here's to doing it again somewhat soon with 5 of you :-) Tell Maddi that the kids are excited to do the gingerbread train that the Nisser left. I was hoping to have Brooke come do it with us.....I don't think they can wait, maybe we'll do 2!
remember to take care of yourself too!
love you all
Thank you for taking the time to update us on what is going on. We are so anxious to read the updates. We are thrilled that things are going in the right direction, even if it seems so slowly. I know the Lord has his timetable and things will always work out for our good. Thoughts and Prayers!
ReplyDeleteGreat news Beverly!!! So excited that she is steadily getting better each day so that more can be done for Maddi to help facilitate her recovery. She is so strong to be able to improve with such steadiness. You are so amazing to be able to update us all daily. I appreciate it and I look forward to your updates every day, helps me know what to pray for, for Maddi and for you. You are such an inspiring woman.
ReplyDeleteIt was so funny to read about the password with the nurse today. It is so awesome that you guys thought to do a password, now they all know you and can share a laugh with you during this time.
I know we don't know each other very well despite that we're cousins, but with our age differences how would we know each other? Right? Well, I feel like I am getting to know you a little bit every day and I love that. Family is so important to me. It sucks that it took something like this to make it happen, but you are strong like your Mother and I love getting to know you even just a little. (((HUGS))) to you my dear.
<3
Amanda