Well, they got Maddi up and out of bed! The OT and PT people came in and worked with her to help her recognized the different parts of her body. That is all part of the rewiring process.They first sat her up on the side of the bed and showed her how to use her hands and feet to help hold herself up. They were so positive and upbeat with her. They brought out a ball for her to work with as well. They were teaching her how to use her hands to hold the ball. She did pretty well. Not a basketball player yet but then she never really was one to begin with.
After the ball playing the got her up and in the wheelchair! Now, some of you may be thinking, how can I be excited about her being in a wheelchair? Well, after you have sat and watched your sweet little girl lay in bed for 11 days with out doing much of anything, you are so excited that she is able to be upright!Nobody wants to see there once vibrant child sitting in the chair but she looks so much better and was much more aware of what was going on. She was looking at the cards and pictures on the wall. She spent quite a bit of time looking at the Christmas tree the Young Women sent for her. It sure makes the room more cheerful.
She also opened her eyes when her daddy spoke to her. She opened her eyes in response to his voice! That is a great step for her. Time will tell if she will consistently do that. Consistently is the operative word right now. We are looking for her to repeat the same actions with the same stimulation.
She had a great night last night! It has been over 24 hours since she her last storm! That means the hypothalamus is settling down! What that means is that she is less likely to become overstimulated and that the healing can progress quicker as a result.We are so grateful to those who have helped us during this time! We have been supported in so many ways. It will be a very long road but we will get through it. It is hard to always be away from home and the rest of my family but I have great kids and they are strong. I guess we will get used to a new normal.
So now you know!
Yay, for the hypothalamus calming down so that Maddi can recovery quickly!!! Great news!!! Great that she is finally out of bed too. Yay, what a great day for Maddi!!! Tears of joy for you!!! Continuing to pray for you all. Much Love...
ReplyDeleteThat is good news. It will be a long road, but those tender mercies along the way will be welcome. I hope and pray for Maddi's progress and recovery everyday. Ari is anxious to see her. I know that's not possible right now. I think some of Maddi's friends feel that if they can just talk to her she would be fine and remember everything. The faith of a child!! Maddi is strong. And she is so lucky to have you and John as her parents!! And for Maddi....Way to go.
ReplyDeleteThat is wonderful news. Those baby steps are already adding up to progress. My hope and prayer is that there doesn't have to be too many more long days. I pray for you and your family every day. Thank heavens for extended family who are able to help when things get rough. Wish I was closer so I could take my turn to give you a break. Love you lots Bev, John and family. When Carl, passed away one of my neighbors said death is like a sharp piece of glass through the heart. Every hug and kind word rubs some of the sharp edges away. I'm sure it works for traumatic events such as this. Hugs, hugs, hugs.
ReplyDeleteWhellchairs are a mixed blessing! Rimarys OTs and PTs are the best. When you are working with all these experts remember that they are only experts in theia field. You two are experts on Maddi. They may know a lot, but you know best! Love you and we're so happy that each posting gets better and better.
ReplyDeleteThis is noel, and I've been keeping watch to stay updated! Love goes out to you guys and best wishes (:
ReplyDeleteI love to hear the progress. We are missing Maddi so much. I admire the good attitude you have. Maddi is always in our thoughts and prayers. Tell her we love her and miss her!
ReplyDeleteI don't know you, I only know of your story through a Facebook/Farmville friend, Pamala U.
ReplyDeleteYour Family is in my prayers and am praying for a full recovery for Maddi
Debi Sallee