Thanks to all who have helped and have prayed for us! Thanks to Maryanne for doing what I could never do (the fundraising).
One thing about being at Primary's is that I see so many people in need! We have been so blessed in so many ways. This is hard but we are strengthened in unseen ways.
Maddi opened her eyes today! It was great to see her "baby blues". She is working hard and responding more today. Baby Steps! She hasn't quite "found" us yet but she responds well. She keeps her eyes open unless she is asleep and she is following the sounds and is trying to figure out what is going on.
She responds well when we read to her and gets a little irritable when we leave. All of which is good news. We want her "spitting mad". Her breathing and blood pressure slows down when we read the Book of Mormon to her. It is calming to her. She is very sensitive to the light, so we keep the lights low when she is upset.
They moved her to a different room but she still is in the PICU. They are hoping for Monday to move her to the Neuro Trauma Unit (NTU). We think it sounds like she is going to MIT or something.
We had a staffing meeting with all the people involved in her care. She is definitely going to survive. Now it is time to help her rewire her brain. It was encouraging. They said to be sure to track her progress in weeks and months, not days. This is a long term recovery and it goes pretty slow but she will recover.
John's cartoon brain describes this way: You are walking up the stairs with a Yo-Yo. There will be lots of ups and downs but eventually you will be at the top.
The password was: "Nimbus 2000"
It is pretty funny to walk past the sniggering nurses as we walk past, especially the ones that have never read Harry Potter.
Now you know! Life is good! Tired is the operative word right now!
One thing about being at Primary's is that I see so many people in need! We have been so blessed in so many ways. This is hard but we are strengthened in unseen ways.
Maddi opened her eyes today! It was great to see her "baby blues". She is working hard and responding more today. Baby Steps! She hasn't quite "found" us yet but she responds well. She keeps her eyes open unless she is asleep and she is following the sounds and is trying to figure out what is going on.She responds well when we read to her and gets a little irritable when we leave. All of which is good news. We want her "spitting mad". Her breathing and blood pressure slows down when we read the Book of Mormon to her. It is calming to her. She is very sensitive to the light, so we keep the lights low when she is upset.
They moved her to a different room but she still is in the PICU. They are hoping for Monday to move her to the Neuro Trauma Unit (NTU). We think it sounds like she is going to MIT or something.
We had a staffing meeting with all the people involved in her care. She is definitely going to survive. Now it is time to help her rewire her brain. It was encouraging. They said to be sure to track her progress in weeks and months, not days. This is a long term recovery and it goes pretty slow but she will recover.
John's cartoon brain describes this way: You are walking up the stairs with a Yo-Yo. There will be lots of ups and downs but eventually you will be at the top.
The password was: "Nimbus 2000"
It is pretty funny to walk past the sniggering nurses as we walk past, especially the ones that have never read Harry Potter.
Now you know! Life is good! Tired is the operative word right now!
We love you and hope for the best. Please let me know if you want me to come and visit with you :) I should be feeling good enough after this weekend to be there whenever you need me. You guys are strong, and Maddi is strong :) Keep thinking positive. Love ya!
ReplyDeleteDonna
What amazing progress and news. Like Donna said, keep thinking positive!!! You guys are stronger than words can describe, going though this and keeping positive...you're all amazing!! Keeping you all in my heart and in my prayers! <3
ReplyDeleteI'm so glad that there is progress. We are all praying so hard for Maddi. Anything we can do to help the process along we will do. We are looking forward to when we can see her. Your family is an inspiration to us. I watched Brooke over the last couple of days and am truly inspired by her charity, her love and her maturity in the face of so much. You have raised great kids and I know my family (especailly Ari) is blessed to have you in our neighborhood. Keep strong and know that even when you may feel down, there are many people sending prayers your way and that you will never be alone.
ReplyDeletePam
We are so happy to hear things are looking up! We are still praying for Maddi and for all of you. We miss Maddi and can't wait to get her back.
ReplyDeleteWhat good news! Thanks for the update. We love you all! I can come next week to help out if you want, I just don't want to be in the way, but i'm happy to help.
ReplyDeleteThe news just keeps getting better and better. With the Lords help things will one day be back to normal. Baby steps. But still progress.
ReplyDelete